The probability is that you, or someone you know, has a child with special needs. It has been reported that 15% - about 1 in every 6 children age 3-17 in the United States is diagnosed with a developmental disability; autism alone accounts for 1 in 59 births, cerebral palsy 1 in 323, down’s syndrome 1 in 691. Many children are challenged with several issues, each requiring a separate diagnosis, more treatment and new challenges. It is staggering to consider the vast population affected by the array of disabilities including physical, intellectual, behavioral, social, emotional, self-care and learning. Unfortunately, this is an increasingly growing population with tremendous, often unfulfilled, needs for each child and their families.
Learning about resources - even the ability to share ideas - is astoundingly difficult. In this age of instant connectivity, it definitely doesn’t need to be this way! We should be able to easily access the plethora of products, services, activities, support, and each other, that is available locally and (inter)nationally with greater ease. Special Needs HQ / SNHQ will make this happen – for parents, caregivers, teachers, business owners… and for our special needs angels.
Raising a child with special needs often feels like an impossible endeavor. There’s never enough… not enough money, energy, time, support, answers. Parents and caregivers often can’t get through the day without feeling exhausted, lonely, scared, and overwhelmed. Our own quality of life is greatly impacted by our children’s limitations – and whilst we love our special angels with all our hearts, and they bring immense joy, they are tremendous work… and our community needs help!
Trying to find resources is a shockingly challenging exploration. While every special needs child is unique, there’s significant overlap in symptomology and, therefore, in potential solutions. Because parents often approach problems in unique ways, this can result in some amazing solutions to help our kids. Some ideas have simply made our own lives easier and less stressful, such as turning an enclosed trampoline into a safe, secure alternative for a bed; some solutions have become thriving businesses making an enormous impact on quality of life, such as the Caroline’s Cart (a grocery cart with a large full seat in the front for special needs children and adults).
At SNHQ, we intend to include and share solutions from all avenues on our site. In addition, we are committed to increasing recognition and accommodation within businesses (such as movie theaters, museums, and amusement parks) for events and programs specifically designed for special needs families.
A nonprofit is as strong as the community that holds it up. Together, we can do more than we can do alone. Let's bring our abilities and passions together to affect real change in the Special Needs community. There are many ways to join us, support our mission, and help get our message to your friends, families and colleagues.
Special Needs HQ / SNHQ.org
A NATIONAL HUB FOR ALL THINGS SPECIAL NEEDS
We have a bold vision for this project.
The development of this website as A National Hub For All Things Special Needs will include:
· Products
· Services
· Resources
· Referrals
· Available grants for Special Needs children and families
· Online tutorials, training and conferences for parents, caregivers, educators
and business owners
· In-person and online support groups, mentoring and community forums
· All-ability parks
· Events
· Activities
· Product exchange
· Sibling exchange forums
…and, of course, we are open to including whatever our community recommends.
Kelly Kay Wynn MS. MSW, LSCW, has worked as a licensed psychotherapist for over 21 years, specializing in resilience, anxiety, stress, relationships and coping skills.
"In 2010, my daughter Makenzie was born. At 6 months old she started to have Infantile Spasms - seizures. Upon evaluation, she was diagnosed with a rare neurological condition called, Pachygyria. In essence, her brain did not fully develop. Over the next 10 years she would be diagnosed with 12 additional diagnosis, each requiring a different doctor, more treatment and new challenges. Even at the chronological age of 11, Makenzie has the average developmental growth of a 1 year old.
In 2020 my son, Elijah was playing and suddenly went into a Tonic-Clonic Seizure (formerly known as Grand Mal). You’d think that our experiences with Makenzie would have prepared us, but watching his body flop around on the floor uncontrollably was the most helpless I’d ever felt. I truly feared he was going to die. After an extensive hospital stay, we were told that he’d probably been having sub-clinical seizures his whole life. Like so many others with undiagnosed epilepsy, we thought he simply had learning disabilities.
Ironically, I am a licensed social worker in private practice specializing in anxiety, stress, coping, resilience and relationship struggles. But even with my training, skills and tenacity for finding resources I was stretched the to max (and sometimes beyond)! Being a parent to a special needs child is extraordinarily difficult; made even harder by the fact that we are often isolated without enough support.
I was continually shocked, disheartened and frustrated at how hard it is has been to get Makenzie’s and Elijah’s Special Needs met - from basic information to essential products and government assistance programs. I discovered a tremendous array of available resources but with no centralized or easy access to them!
I have always held a passion for education and resources that provides practical tools to reduce suffering, improve wellbeing, and make life easier – and more joyful! I felt inspired to help the Special Needs community better cope with our challenges by starting a non-profit organization, SNHQ (Special Needs HQ). We are creating a website that acts as a 'National Hub For All Things Special Needs'; a single website to access all the information you could ever need locally, state-wide and nationally.
I want Special Needs families, caregivers and caretakers to be able to go to SNHQ.org and find anything and everything they need from products, services, grant support, information about educator’s obligations to provide support, government programs, to finding local special needs events and a community of neighbors who are also struggle with the same issues.
We are at the beginning stages of fundraising and developing grant proposals. Once we have enough funds to build the basic functional website, we will then seek out corporate and government grants to complete the website and keep it updated, expanding and relevant.
I will be creating a Blog to keep you up to date on my children's journey, and how SNHQ is progressing. Please join our revolution on behalf of Special Needs children and their families."
Kelly is a licensed psychotherapist, life and resilience coach, and personal growth educator with over 21 years of experience. She graduated Phi Beta Kappa with a bachelor’s degree in Psychology from the University of CA, Irvine, and holds two graduate degrees: a Master’s in Family Studies from the University of Wisconsin, Madison, and a Master’s in Social Work from UCLA. Kelly prioritizes work-life balance as she manages her demanding roles as mental health professional, wife and mother of two special needs children.
If customers can’t find it, it doesn’t exist. Clearly list and describe the services you offer. Also, be sure to showcase a premium service.
Having a big sale, on-site celebrity, or other event? Be sure to announce it so everybody knows and gets excited about it.
Are your customers raving about you on social media? Share their great stories to help turn potential customers into loyal ones.
Running a holiday sale or weekly special? Definitely promote it here to get customers excited about getting a sweet deal.
Have you opened a new location, redesigned your shop, or added a new product or service? Don't keep it to yourself, let folks know.
Customers have questions, you have answers. Display the most frequently asked questions, so everybody benefits.